ADHD

Throwback Thursday: My Son With His Support Person(updated)

Today is a happy and sad day for our family. I feel a bit tearful as I share this post.

Henry, our support person for Jayden is leaving for college. Together, Henry and Jayden have shared so many special days over the course of the last year our family is forever changed by his presence in our home.

We know Henry will go on to help so many more families as he pursues his career in education. He will be missed and always welcome in our home.

My Son With His Support Person

For the last 2 years my son has had the support of few different caring and young people involved in his life. Jayden is 8 years old and suffered a brain injury as a newborn baby.  From his injury he is faced with developmental disabilities that impair his learning, working memory, ability to problem solve and make good decisions. Aside from learning issues, having the social skills to build friendships and maintain them has been another struggle.

Having a support person has given Jayden the extra set of eyes to keep him safe, keeping him busy after school so he doesn’t get down on himself or others around him. Part of the effects of his disability can cause Jayden to be depressed and have a negative self image.

Henry, our current support person works incredibly hard to keep this from happening. He is the best thing that’s happened to Jayden this past year. He helps Jayden with his hygiene reminders, social skills, bedtime routines, and reward charts. He works really hard to give Jayden all the experiences that he would otherwise miss out on, always maintaining a non-reactive and calm disposition around him, even when Jayden is really worked up.

They spend a great deal of their time together at parks, interacting with other children, learning social skills, recognizing good and not so good behaviors and picking up on social cues. These activities at the same time do wonders for his self esteem.

They often take trips to museums, the planetarium, the library, a trampoline park and they are always at the pool it seems! Jayden had become quite the swimmer! They spend most of their time outdoors when they can, building Jayden’s confidence with sports. They play disc golf, basketball, football, ride bikes and fly his kite.

Henry is an amazing young man that puts all of himself into his work when he is with Jayden. He is never distracted by his phone, and is 100% present when he is interacting with Jayden. I don’t know how we will replace him when he leaves for college at the end of the summer.

If you have free time and this sounds inspiring to you, consider being a support person to someone that needs a buddy in your area. In our community they are incredibly short staffed on support workers and they are so valuable to the children and families they serve.

 

Thanks for reading and supporting our family blog! And thank you Henry for being the amazing person you are!

#colecampfireblog, #disabilities, #support, #community,

D88576AB-C74A-43C5-B0D8-9EFA6355F293

 

12 replies »

  1. I am sorry that you are loosing him and hopefully you will find someone that is just as good or better. I know it is a great that he is going to college but it is too bad that he has to leave to do it. I am a firm believer in everything happens for a reason, so there is a reason for this and something good for Jayden is on the way.

  2. What a beautiful tribute to Henry. He sounds like a rock and a role model for Jayden. I hope you find someone who is just as kind and committed to fill the void. <3

    Just wanted to share real quick that someone close to me suffered an acquired brain injury in their mid-20s and has found a few tricks to support their working & long-term memory, which I'd like to share in case they may be helpful to Jayden, now or in the future. Completely unsolicited, so I won't be offended if you delete or ignore. Promise!

    1. Memory Palaces: The (adult) book "Moonwalking with Einstein" presents a technique where you, for example, place the items on your grocery list within your home (a massive stick of butter melting on the driveway, an eggplant hanging from the chandelaier, etc.) to engage multiple parts of the brain in the memory effort, and it's been life-changing. I'm sure creating a imaginary visual checklist could be especially useful for a child.

    2. Lion's Mane Mushroom (Host Defense brand): This supplement has been proven to promote neurogensis, allowing the brain to make new neural connection. My friend had 1/3 of his brain removed and couldn't remember his name after surgery, but he has noticed a substantial differnece while supplementing with lion's mane over the last 2-3 years. The websites PubMed and NIH should have some studies you or his GP could check out, if interested.

    • ❤️Thank you so much for sharing such thoughtful information … yes, Jayden does struggle with working memory at school and home! I will look into that book and supplement! 🤗🤗 ❤️

  3. I know how valuable it is to find someone who is good and you can trust, when taking care of a loved one. I’m at the opposite end, my mom has dementia, will be 99 years old soon and it’s hard to find good people willing to take care of her. I don’t know where you live, but in our part of the U.S. there’s a website called care.com that does background checks on people they display online wanting jobs! I haven’t tried them yet, but it looks pretty good and I know people who have had good results. Henrys are hard to come by, what a wonderful acknowledgment, Jayden looks precious, a true blessing in your family, I’m sure!! Best wishes as you find someone to replace Henry❤️

    • Thank you so much!❤️Care.com is a fabulous idea! I hadn’t thought of that… I am hoping Henry will still be a part of our lives..
      I bet finding care for aging parents is just as hard if not harder! It’s so stressful to leave someone you love in the hands of someone new. Best of luck with your search as well, and thank you so much for commenting! It’s a tough family day…

  4. Your family is so loving and warm, I am sure Henry has gotten so much love from Jayden and all of you. It’s a big transition and I am sending good thoughts that you receive someone just as wonderful as Henry. ♥️ xo

    • Thanks Jennifer! I’m hope we will… it was sad to see Henry leave for the last time yesterday. I think it was hard for him too.. 😊

Leave a Reply